End-user involvement in HIV guidelines development is often little, late or absent. Other disciplines have long advocated ‘handing over the stick’ (i.e. power and control), as both ethical and strategic. Women HIV activists have called this respectful engagement with, and learning from, communities ‘MIWA’ (meaningful involvement of women living with HIV and AIDS). Recently, the World Health Organization (WHO) commissioned a global values and preferences consultation, led by user- investigators [1] prior to starting a sexual and reproductive health (SRH) and human rights of women living with HIV guidelines update [2].

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